What's it like to help families and individuals navigate incredibly difficult healthcare decisions they never dreamed they'd have to make, especially when the patient is a child?
Palliative Care Social Worker Shannon Barnes explains the ways she and her team at Texas Children's Hospital provide support to patients and their families; the appropriate time to introduce their services into a patient's care plan (spoiler alert: it's not at end of life); and how she uses music as a therapeutic release when dealing with her own grief.
Produced by Nick Rumacyzk. Theme music: "P to the A" by Anonymous Novels.
Bury Me In NJ
In 2005, my mom was diagnosed with early-onset Alzheimer's when she was 54 and I was 22. This SubStack is a collection of my writings through her illness and after her subsequent death in April 2023.
In 2005, my mom was diagnosed with early-onset Alzheimer's when she was 54 and I was 22. This SubStack is a collection of my writings through her illness and after her subsequent death in April 2023. Listen on
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